Hello!

[willowfire365]

Hi everyone! I've been a member or this site for a little while and i had lost a lot using LT and then i went onto WW but due to my health problems i've decided to use CC and the My fitness pal app to loose some more weight! I'm not having the best time of it with my health at the moment and due to pain and fatigue I'm lucky if i manage 800 cal at the moment. I know it's really not good for me but I'm trying to eat a bowl of fruit a day and the 800 cal are healthy things it's just too much to eat more than that at the moment in the last week i've lost 6lb which i know is due to my low cal diet but in my defence i'm spending most of the day laying in bed at the mo so it wont take much energy to do that! lol I'm counting the cal so i know how much i've had and how much more i need to get to at least 800 a day.

I wanted to say too how much i love the My Fitness Pal! It makes it so easy just to scan things in esp when i'm so tired and sore - love it!!

So hopefully I'll manage a bit more soon but bring on the cal counting!

Hope everyone is really well!

Tc X

 

[TracyGWill]

Hi. Sorry about your health problems. I can sympathise, as I have ME and have also just had knee surgery, so I'm totally house/sofa/bedbound at the moment.

I'm glad you realise that 800 cals is far too low, and dangerous to maintain for long. It also won't help you lose weight in the long run, as your body will go into starvation mode and rebel.

What I personally would recommend (and I'm not an expert!), is if you struggle to eat, at least have some calorie-dense foods, like cheese, nuts, maybe even a bit of chocolate. Fruit won't do it, as you'll tire yourself out eating low calorie stuff, so think about the type of food you expend your eating energy on. As anyone on here will tell you, the lowest recommended calorie level for normal eating (as opposed to these VLCD diets) is 1,200 a day, but I'd aim for nearer 1,500 myself, especially if you're ill to start with.

All the very best.

Tracy

 

[willowfire365]

Hello Tracy, ME is the reason I'm not doing so well at the moment - I've had it for about 12 years now and I'm going through a bad patch at the moment. I'm so sorry to hear you've had to have surgery on your knee, it's bad enough with ME let alone anything else! I'm going to aim to eat something more a little later on - feeling a bit nauseas at the moment but i think that's due to being tired and in pain. I think I'll go for something like cheese on toast and see how that goes...think part of the problem is that i just don’t fancy anything at the moment too! Stupid body!

Hope your as well as possible at the moment and thank you so much for replying!

Tc X

 

[TracyGWill]

You know, I wondered if it was ME from the way you described how you were. I've had it for 23 years, so long it's become part of who I am. I've been told I need to be on crutches for 6 weeks after my op - I'm sure if anyone can appreciate how hard I'm finding that, it'll be you!

Cheese on toast sounds like a good idea - in fact it sounds delicious! Unfortunately, loss of appetite is not one of my ME symptoms, lol, though I know it must be really hard. 5 stone into an attempt to lose 10 stone, I'm just trying to stay on the straight and narrow during my imprisonment!

Hope we can keep in touch to spur one another on! Do you have a diary yet? Mine's in the Other Diet Options/Xenical/ Xenical Diaries section; I started it last week as a way of keeping my mind focused on weight loss during my recuperation.

Take care.

Tracy x

 

[willowfire365]

I feel like it’s who I am now too! Crutches are a complete pain in the bum! I use 2 walking sticks and there bad enough! I know I sound silly but I was told to be careful of crutches as they can hurt your upper arm if you loose your balance. Really hope your doing ok on them though! 6 weeks is such a long time but hopefully it’ll be all healed by then and you can get back on your feet a bit more!

I didn’t cope with cheese on toast…I didn’t fancy it but we had some salmon in the fridge that needed eating so I had that with some salad but I didn’t manage to eat it all. My appetite has completely upped and done a runner! So much so that as I have some Lipotrim shakes left I’ve had one for breakfast and one for lunch mainly to ensure I have at least a few cal in me! Not doing it completely though as I’m having milk in tea and some orange squash and that I just really don’t have the energy or inclination to eat at the moment to the point that chocolate and things like that don’t interest me at all!

You’ve done so brilliantly so far that’s just incredible! I did Liportim and went from 22 stone to 14 ish and now I’ve put some on so just keeping an eye on that now saying that the appetite doing a runner has sort of stopped me worrying! I bet you’ll be great and stay strong!

It would be wonderful to keep in touch! I have a diary under the Lipotrim VLCD section but I stopped updating that once I finished on the diet…I think I might start one on here in the diary section. I can PM you my email for Facebook if your on there?

Hope your having a good health day!

Tc X

 

[jensonbuttongirl]

Thought I would come and say hello. I also have ME, was diagnosed about 2-3 years ago but my mum thinks I've had it for a lot longer. I've been on WW since Nov 2010 but decided to move to calorie counting a couple of weeks ago and lost 4lbs this week. If you are on my fitness pal feel free to add me, same username as here You are both a bit ahead of me on weight loss but we are all aiming for a similar goal. It would be nice to keep in touch with you both if you would like to

 

[TracyGWill]

I feel like it’s who I am now too! Crutches are a complete pain in the bum! I use 2 walking sticks and there bad enough! I know I sound silly but I was told to be careful of crutches as they can hurt your upper arm if you loose your balance. Really hope your doing ok on them though! 6 weeks is such a long time but hopefully it’ll be all healed by then and you can get back on your feet a bit more!

I didn’t cope with cheese on toast…I didn’t fancy it but we had some salmon in the fridge that needed eating so I had that with some salad but I didn’t manage to eat it all. My appetite has completely upped and done a runner! So much so that as I have some Lipotrim shakes left I’ve had one for breakfast and one for lunch mainly to ensure I have at least a few cal in me! Not doing it completely though as I’m having milk in tea and some orange squash and that I just really don’t have the energy or inclination to eat at the moment to the point that chocolate and things like that don’t interest me at all!

You’ve done so brilliantly so far that’s just incredible! I did Liportim and went from 22 stone to 14 ish and now I’ve put some on so just keeping an eye on that now saying that the appetite doing a runner has sort of stopped me worrying! I bet you’ll be great and stay strong!

It would be wonderful to keep in touch! I have a diary under the Lipotrim VLCD section but I stopped updating that once I finished on the diet…I think I might start one on here in the diary section. I can PM you my email for Facebook if your on there?

Hope your having a good health day!

Tc X

Hello again! Sorry to hear you're still not feeling good in the appetite department. I always joke with my family that they'll know I'm dying if I ever lose my appetite! I think the only time it ever really happened was after I had my daughter and went through a bad time with postnatal depression.

I'm still having fun with the crutches - my supposedly "good" leg is in agony from the strain I'm putting on it. I was warned about the arm thing too, you have to always take your arms out of the support things before sitting down, and I kept forgetting at first!

You've done incredibly well with your weight loss! The trick is to keep it off, isn't it? Now I'm halfway to where I'd like to be, I've started looking at books on the psychological side of weight loss, how to change your mindset so you don't just put it all back on again. That's happened to me more times than I can count, and I'd really like it not to happen this time - I'm getting too old for all the grief of it!

I am on Facebook, so please do PM me. How many posts do you have to have to be able to access messages? I haven't sent or received any yet. x

 

[TracyGWill]

Thought I would come and say hello. I also have ME, was diagnosed about 2-3 years ago but my mum thinks I've had it for a lot longer. I've been on WW since Nov 2010 but decided to move to calorie counting a couple of weeks ago and lost 4lbs this week. If you are on my fitness pal feel free to add me, same username as here You are both a bit ahead of me on weight loss but we are all aiming for a similar goal. It would be nice to keep in touch with you both if you would like to

Hiya! Hey, we're getting our own little ME club - not a very fun club to be in, mind you, lol. I am on MFP, though I've never added any friends on it yet - I'm always a bit wary of giving access to my food diary, as I don't exactly eat what you'd call a mega healthy diet! I calorie count, and basically eat whatever I want within my calories, as I find that the easiest way to keep going at it. So I eat a lot of ready meals (very convenient and easy to calorie control), frozen veg, yogurts, cereal bars, low fat crisps etc. But it works for me, lol.

Were you very young when you were diagnosed with ME? (bear in mind I'm nearly 50, so anything less than 35 is very young to me ). xx

 

[willowfire365]

Lol my parents must think it isn’t good as my dad went and got some caramelised onion and cheese bread so (I usually adore caramelised onion!) so as I would eat something…I managed what it classes as half so that’s a good thing! I also had a weight watchers soup...it’s the only soup we have in the house! Lol So today I had 2 LT shakes, dinner, a sugar free jelly and a ww bar thing. I decided tonight that I really have to sort this eating out as I’ve had a massive headache all afternoon which is why I’ve forced down more tonight! Feel so full and must look pregnant tonight! Feel like I’ve eaten so much!!!

Be careful and I really hope things settle with your knee soon! I think I got into the habit of eating out and enjoying myself and not worrying at all but I new that I’d got to comfortable lol I do know what you mean though about it being grief lol

Oh I don’t actually know what the post count is before being able to PM but I’ll give it a try!

Hello jensonbuttongirl! As Tracy said we’re getting a little group…not one that you’d want to be in but oh well! Lol it’d be wonderful to keep in touch and I’ll add you both on MFP! Sounds like your doing really great so far! Hope your as well as possible at the moment!

Sleep time soon me thinks….so tired!

Speak soon and tc XxX

 

[CC]

I have ME too!! It really is a little club xxx

 

[TracyGWill]

I have ME too!! It really is a little club xxx

Hello! Lol, welcome to the club. Hope you're well. xx

 

[jensonbuttongirl]

Hiya! Hey, we're getting our own little ME club - not a very fun club to be in, mind you, lol. I am on MFP, though I've never added any friends on it yet - I'm always a bit wary of giving access to my food diary, as I don't exactly eat what you'd call a mega healthy diet! I calorie count, and basically eat whatever I want within my calories, as I find that the easiest way to keep going at it. So I eat a lot of ready meals (very convenient and easy to calorie control), frozen veg, yogurts, cereal bars, low fat crisps etc. But it works for me, lol.

Were you very young when you were diagnosed with ME? (bear in mind I'm nearly 50, so anything less than 35 is very young to me ). xx

Nice to know there are other people with ME around...sometimes feel like I'm the only person in the world with it I wouldn't say my diary on MFP is that healthy But as long as I'm still alive and loosing weight I figure it must be ok I have my diary locked with a code so only people I choose can see it

I was about 20 when I was diagnosed, in the middle of my first year of a nursing course Hoping one day that I can go back and train to be a midwife but will have to see how it goes

Hello jensonbuttongirl! As Tracy said we’re getting a little group…not one that you’d want to be in but oh well! Lol it’d be wonderful to keep in touch and I’ll add you both on MFP! Sounds like your doing really great so far! Hope your as well as possible at the moment!

Sleep time soon me thinks….so tired!

Speak soon and tc XxX

Nice to know that there are other people around who know what it is like

I have ME too!! It really is a little club xxx

Hi! This club is just growing and growing

 

[TracyGWill]

Nice to know there are other people with ME around...sometimes feel like I'm the only person in the world with it I wouldn't say my diary on MFP is that healthy But as long as I'm still alive and loosing weight I figure it must be ok

I was about 20 when I was diagnosed, in the middle of my first year of a nursing course Hoping one day that I can go back and train to be a midwife but will have to see how it goes

Nice to know that there are other people around who know what it is like

Hi! This club is just growing and growing

I think that's part of the problem with ME, there actually are very many people who have it, but it's little heard of, and very misunderstood. I was diagnosed with it in the late 1980s, when it was still being called "yuppie flu", and I don't think people's understanding of it has advanced much since then. I've more or less given up on getting help from the NHS with it, as there doesn't seem to be anyobe specialising in it around here (North Staffs). On the bright side, my relapses are not too frequent, so most of the time it's just a matter, in my case, of managing the pain, and trying not to do too much - mostly I just work and sleep, lol.

Anyway, that's my little ME rant over - hope everyone's ok today!! xx

 

[jensonbuttongirl]

I think that's part of the problem with ME, there actually are very many people who have it, but it's little heard of, and very misunderstood. I was diagnosed with it in the late 1980s, when it was still being called "yuppie flu", and I don't think people's understanding of it has advanced much since then. I've more or less given up on getting help from the NHS with it, as there doesn't seem to be anyobe specialising in it around here (North Staffs). On the bright side, my relapses are not too frequent, so most of the time it's just a matter, in my case, of managing the pain, and trying not to do too much - mostly I just work and sleep, lol.

Anyway, that's my little ME rant over - hope everyone's ok today!! xx

I always have the problem of people not understanding. I think part of the problem is that when people are around I push myself and use more energy than I really have. My Gran didn't have any idea how bad it was until I lived with her for 6 months, she said to my mum that she didn't realise how little I could do.

When I was living in Norfolk I was referred to a specialist service but I was in King's Lynn and they were in Great Yarmouth so it didn't work too well. No I've moved my referral to one in Oxford has just come through but I really don't know how I am going to get to and from Oxford and still have the energy left to follow through with their therapy plan. I know that my GP had a choice between one I had to travel to and one which would come to me. She knows I can't walk very far but she still referred me to the one I have to travel to

Specialist services can be very difficult to find. The only reason I was able to go to my GP here to get the referral as soon as I moved was that the clinic in Norfolk had told me there was one in Oxfordshire. It took me quite a while to find the right service in Norfolk, I was referred to sleep clinic and a Neurologist first and he was the one who told my GP about the specialist clinic.

I just want to get well, I know I'll probably never be 'normal' again but I'm so fed up of being stuck in the house all day on my own Its nice to be able to have a rant to people who understand where I'm coming from.

Hope you are all having good days today

 

[dd82]

Ladies I was just reading your posts and feel inspired as its hard enough on this journey without the added difficulties you are all facing, keep up the good work you are all an inspiration

 

[willowfire365]

It is really hard coping with everything that goes with M.E but it's great to know there's a few of us on here that can support each other.

I'm having a rather bad day again today...health isnt good and i got a phonecall from my boyfriend last night saying he didn't feel the same way he used to....we'd been together about 7 months. It's all adding up at the moment and what with not being fussy about eating before I feel even less interested in eating now

Tc everyone X

 

[TracyGWill]

Ladies I was just reading your posts and feel inspired as its hard enough on this journey without the added difficulties you are all facing, keep up the good work you are all an inspiration

Thank you, that's very nice of you to say. I hope you're having a good day and are doing well on your weight loss journey. xx

 

[TracyGWill]

It is really hard coping with everything that goes with M.E but it's great to know there's a few of us on here that can support each other.

I'm having a rather bad day again today...health isnt good and i got a phonecall from my boyfriend last night saying he didn't feel the same way he used to....we'd been together about 7 months. It's all adding up at the moment and what with not being fussy about eating before I feel even less interested in eating now

Tc everyone X

I'm so sorry you're having these problems. It can be so hard for those close to us to understand the reality of life with ME. It's one of those invisible illnesses that you can't appreciate if you haven't experienced it. I'd love to say my husband is super understanding, but he does find it difficult. He's a super fit athlete, even at the age of 50, and to him, exercise is the answer to everything!

I do hope things start getting better for you very soon, both healthwise and emotionally. xx

 

[TracyGWill]

I always have the problem of people not understanding. I think part of the problem is that when people are around I push myself and use more energy than I really have. My Gran didn't have any idea how bad it was until I lived with her for 6 months, she said to my mum that she didn't realise how little I could do.

When I was living in Norfolk I was referred to a specialist service but I was in King's Lynn and they were in Great Yarmouth so it didn't work too well. No I've moved my referral to one in Oxford has just come through but I really don't know how I am going to get to and from Oxford and still have the energy left to follow through with their therapy plan. I know that my GP had a choice between one I had to travel to and one which would come to me. She knows I can't walk very far but she still referred me to the one I have to travel to

Specialist services can be very difficult to find. The only reason I was able to go to my GP here to get the referral as soon as I moved was that the clinic in Norfolk had told me there was one in Oxfordshire. It took me quite a while to find the right service in Norfolk, I was referred to sleep clinic and a Neurologist first and he was the one who told my GP about the specialist clinic.

I just want to get well, I know I'll probably never be 'normal' again but I'm so fed up of being stuck in the house all day on my own Its nice to be able to have a rant to people who understand where I'm coming from.

Hope you are all having good days today

You're right, it's so hard for people to understand how hard it is, even thosr close to us.

I'm glad you've got access to a specialist service. I must admit I've been so focused on the problems with my legs for the last couple of years that I haven't really pushed for any further ME assistance. The last time I saw a specialist it was in Liverpool, which is a long way from where I live. He confirmed the ME diagnosis, and said he thought I also had fibromyalgia. But he then went on to say that I'd be unsuitable for the graded exercise therapy he was able to offer, because if I was already working full time and looking after a young child, I just wouldn't have the energy to cope with it. He probably wasn't wrong!

I really hope the specialist you see is able to offer you some constructive help. xx

 

[jensonbuttongirl]

It is really hard coping with everything that goes with M.E but it's great to know there's a few of us on here that can support each other.

I'm having a rather bad day again today...health isnt good and i got a phonecall from my boyfriend last night saying he didn't feel the same way he used to....we'd been together about 7 months. It's all adding up at the moment and what with not being fussy about eating before I feel even less interested in eating now

Tc everyone X

:hug99: Just keep going...don't let him mess your life around. Hope the rest of your week has gone ok

You're right, it's so hard for people to understand how hard it is, even thosr close to us.

I'm glad you've got access to a specialist service. I must admit I've been so focused on the problems with my legs for the last couple of years that I haven't really pushed for any further ME assistance. The last time I saw a specialist it was in Liverpool, which is a long way from where I live. He confirmed the ME diagnosis, and said he thought I also had fibromyalgia. But he then went on to say that I'd be unsuitable for the graded exercise therapy he was able to offer, because if I was already working full time and looking after a young child, I just wouldn't have the energy to cope with it. He probably wasn't wrong!

I really hope the specialist you see is able to offer you some constructive help. xx

When you have multiple health problems it is hard to know which one to put first sometimes. He probably was right about the graded exercise. I've not been diagnosed with fibromyalgia specifically but I do get a lot of joint and muscle pain. I'd love to know how you found it having a child when you have ME. Me and hubby would love kids but my main worry is not being able to manage with energy levels

Weight loss wise I've had a pretty good week, lost 2lbs which considering TOTM is really good I'm so glad that I'm loosing this weight...one less thing people can try to blame my ME symptoms on.