Thank you for your reply Katie!
I have a similar story too, I was talking to friends in work (all vet staff lol) and a few people had been diagnosed with thyroid problems and they talked me in to going. I have a MASSIVE vein/artery phobia, so it was a massive thing to make myself do. My GP is amazing and he gave me a load of diazepam to take for the tests lol. Doesn't take it away, but chills you out so much you barely care. Amazing stuff
But, it wasn't my thyroid
I've had 2 MRI's, x-rays, ecg/24hr ecg, neck and abdomen ultrasound (found gall stones lol), many many many blood tests, and most recently I was in hospital for 5 days to have a glucose tolerance test and a 72hr fast and they wouldn't let me take diazepam!!! I haven't had the results from the hospital stay yet, but everything else was fine.
They do think I had thyroiditis over about 6months last year, but can only see evidence in the blood tests and missed it at the time!!
But yeah, apart from that no one knows yet.
I kinda guessed the first ME appointment would be just a consultation and a bit of a chat really. I know there's not an awful lot they can do for it either is there? Just like pain management and coping strategies and things?
My biggest thing is my job. I've kept my lowly 19hrs, but have had them spread over more days to try and help me out. So I do 3 or 4hrs shifts per day. My big issue is my weekend shifts as I can't do anything about those and I work 21hrs over the two days when I do a weekend and I do them 1 in 3 weeks. I just completed my first one and I am seriously paying for it, but I got through it
I feel like I've been hit by a truck tho! I haven't had this big hit of all over pain for a while and I'd forgotten how bad it was
I even took painkillers yesterday, which I try to avoid as much as possible!
The friends/socialising thing is hard. And yeah I'm already doing that thing where if I know I have plans one day I will make sure I haven't the days either side. It sucks doesn't it?! One of my friends has been fantastic, but it's difficult with the others at the moment. They don't seem to realise that I struggle with last minute plans and need to plan my weeks out! Never mind food and SW too!! Lol
I'm thinking of going back to swimming too. I drive now, which I didn't do when I used to swim in the past, so I could stop at a pool on the way home from a short shift at work or something
I LOVE swimming and I think it'd be great for my muscles and crappy joints. I miss all the other stuff though. I can't imagine how hard it must have been to have to give up Roller Derby
God yes, everything tires me out!! And the mental/emotional stress from work almost feels worse than the crazy physical stuff. And when my depression or anxiety is bad it seriously wipes me out!
Oh man, we're just broken aren't we?! LOL! Thank you for sharing and I'm really looking forward to following your diary and hopefully getting to know you too
Hope you have a really good week.xxx