Bad chest last night - those damn flowers! Mum said she could smell the lilies still and to throw them away - I've not told her about how bad my chest is.. so was glad she said to bin them..
Woken this morning with what appears to be a flippin cold! Hope not - not for my sake, a cold's just a cold, but for mum's!
She must've slept ok as I didn't hear her get up last night.. and she is still sleeping now bless her. She went horribly pale yesterday.. might write it in her care folder... just so the nurses read it too... she was very very tired last night.. but she had had THE most idiotic woman visitor yesterday! I was seething when she left!!
Conversation went something like this:
Mum: Hello V... good to see you
V: Helloe, here's some grapes - what's wrong with you?
Mum: Cancer
V: What are they doing about it
Mum: Nothing they can do
V: There must be something - you hear all about these new treatments abroad all the time
Mum: No , honestly, there's nothing
V: Well, where is it? Can't they just chop it out?
Mum: No, its in the joint of my hip and in my spine.
V: Can't they just take away your hip and give you a new one?
Mum: No, it's in my spine too and it's inside my bones
V:Well what about bone marrow? Can't they do that
Mum: No. There is nothing they can do except manage my pain
V: Surely there is something, I mean, they can't just give up on you?
Mum: No, there really is nothing they can do.. I had radiation therapy and now am on some tablets and once a month have a drip to help strengthen my bones but that's it,
V: What about chemotherapy? Can't they do that?
Mum: No.. etc etc
The entire visit was like a spanish inquisition... I had to exricate myself from hearing distance as I wanted to throttle the insensitive creature.. and at one point I did intervene.. it was when mum said "I have no control over anything any more"... so I went in and said, hang on a sec.. no control over anything? Yes you do... and I laughed (it was a nice jovial kind of tone - just in case you think I was being stroppy)... so she wanted to know what she had control over so I said.. ok.. you have control over: what you eat, what you drink, when you eat, when you drink, when you sleep, when you get up, what you wear, who you see, where you go, you have control over your finances, who cares for you, where you are, what you do... the one thing you have no control over is this damn disease and that's the stinker.. the one thing you truly want control over you haven't got... but all the rest of it you have.. so ner! lol
The 3 of us laughed and she agreed... lol But I feel sad she feels that way, and I understand it too... but I was also glad to be able to put it to her that she really does have choices and control in her life and as long as she has a tongue in her head she will always have some control... she agreed..
I asked her if she would like to try and make something in the kitchen - she hasn't been in there since 2nd August.. but she cannot stand up long enough to do anything.. and if she sat she hasn't the energy to carry stuff.. so she said no, and when the occupational therapist came she asked her what did she need to help her in the kitchen, and she laughed and said - my daughters! lol lol
She had a busy day yesterday - 2 visitors and the occupational therapist , twice. No wonder she was so tired.
No visitors planned today and I reminded her last night that, if she wants to go anywhere she just has to say and we will do it! No worries!
The damn weather is depressing her now.. all this rain.. so she said she couldn't think of anywhere and I know, it's all about being seen in the wheelchair... and I understand.. it's a huge mental step to take..
We talked about her church.. I am really cross that the vicar hasn't been in touch.. I know how busy ministers are, and, it could be that no-one has spoken to him, but even so,.. not very Christian.. and as one who works for the church, I KNOW how the system works so there really are no excuses after all these weeks...
I had horrible dreams last night.. oh, and confession time - I had a slice of the apple and olive cake I baked.. OMG... LUSH LUSH LUSH... it's high on my list of things I WILL have when I am a skinny minnie again (BUT only if I have lots of others to share it with so I have "just the one")... it was deeeeevine!!
Right - dreams... dreamt about being on my bike, the older one, Poppet, and waiting to meet up with a load of mates to do a huge treasure hunt.. and went down a slip road on bike and realised I wasn't wearing my protective trousers so went back up the slip road (the wrong way).. caught sight of 2 of my mates.. and a man in a high viz appeared and told me to park the bike in front of this coffee place which was adjacent to a huge posh hotel (and the back car park was where all had met up to set off on the treasure hunt).. and then, my bike had no front wheel on it and the bloke in the high viz said I had come off the bike.. and that he had to charge me for a traffice offence for going the wrong way up the slip road and it would be a £30 fine and points on my license.. he called it a P90 ... lol he was telling me this in my hotel room??? and next thing I am sat chatting with first hubby (who died in 1995) and he was talking about the previous evening in the coffee shop and I couldn't remember a thing about it.. and then others were joining in the conversation and I became very upset as I had no recollection of it at all... they thought it was funny and I didn't... I was terrified and told hubby to get me to a hospital as I truly had no memory of coming off the bike nor of the coffee shop evening with everyone...
It was horrible! Very unsettling...
That said.. I got more sleep last night than I have in ages and hope to again tonight.. I went to bed around 10.30pm and set the sleep timer on the telly and drifted off... had to get up at one point to go to the loo,. oh, and mum has this thing round the loo to help her get on and off it...it's brilliant for her.. but it restricts me somewhat so I have to move it each time, lol, and I think I woke her when I did as I hit the shower cubicle with it.. felt bad about that.. so.. must try and be more alert if happens again..
Mum said she had a proposition for me yesterday - she wants to pay me to clean her house when I stay... I told her no.. she was my mum and I wouldn't want to take money for cleaning her house coz I love her... and she got cross and said if I didn't take money for cleaning she would employ someone and use her attendance allowance to pay them instead... lol stubborn old bugger (that's genetic too!!)... I told her I was happy to clean but not happy about taking money from her for it.. so she said.. how about I "give" you some money instead then.. but not say its for cleaning... and I roared laughing and said, "mum, you can always GIVE me money... lol lol lol "
BUT... I told her .. if she is using her attendance allowance to "give" me money then she needs to "give " the same to my sister... otherwise it wouldn't be fair... she gave me a funny look... and I asked her is she giving sis money to go shopping? to run her to appointments? to fetch stuff? and she said no, just petrol money... and I said well.. petrol money is one thing.. but if you want to use your attendance allowance for those who attend to your needs, then it's only fair that you do it equally... I think she was shocked... and I have to admit, I was a bit surprised at the words tumbling out of my mouth too! lol lol lol
Food for thought... eh?
RIght... it's almost 8am and I need to get the paper out of the post box and make brekky for mum and take her meds up...
Lots to do today - going to start cleaning (do downstairs this morning whilst mum in bed) and baking (ginger biscuits and almondy fig tart) and type up the scatter rally for the club... can do the latter when mum comes down... and will vac and polish her room whilst she's downstairs later...
Busy times - oh and apart from cake, and some of my sisters chicken soup (remind me to tell you the soup saga!!! LMAO)
Happy Saturday folks!!!