Thank you all for your lovely words and encouragement.. and advice too.. I have had little contact with sis today and I even put mum off calling her at one point saying, let her have her weekend without worrying.. and I just sent her a brief text to update her whilst we were at the hospital.
Its been a long day... we both had a rough night... mum got up several times and needed more morphine which is unusual, but she has been complaining of pain again now which is not so good..
She had a hospital appt at 10.30am and as we were getting ready to go sis rang, lol, and asked if she was hooked up - bless her, she has clearly forgotten the timings... and.. she hadn't put the right meds in the pots for mum but I won't be telling her that.. every time I come here I am made to feel inadequate and my mistakes pointed out.. stupid things like "oh you left the dishwasher on the wrong setting", "you didn't do the shredding properly" etc... just nit picking nonsense which, this time, I just let go... have decided that it's best to try and not let the constant criticism get to me - or at least not let it show..
After breakfast, and whilst she was laying in bed, I gave mum a hand massage with the cream I bought in Cornwall.. it sent her off to sleep so I left her to just relax and then woke her to get ready to go to the hospital. She had breakfast first, which is now 2 days on the trot! Plus, just before we set off, a ramekin dish with sliced melon in...
We chatted away as we set off and the sun was shining again.. I packed an "emergency" overnight bag for her.. which she looked quizzically at me about and I pointed out it said on her appointment letter that sometimes they keep folks in and I was just being a good girl guide.. lol... we both chuckled and I loaded the bag and popped it in the car.
Her wheelchair weighs a flippin ton! But I managed and we reached the hospital in good time.. they took her blood and then said she might have to come back tomorrow as the last test showed very low calcium and, if her haemoglobin was too low then she'd have to have a transfusion... they said if her calcium was too low then no drip of the bone treatment... she looked very worried and I just told her they were being cautious and it's very common for ladies of a certain age to need calcium supplements so what's another pill in her pot each day? I also asked the nurse if it was really necessary to sit around there all day waiting for the blood test results as mum only lives 15 minutes away... that did it.. lol we were sent away and told they would call us! Result!!
So - there we were,.. up early... wheelchair in car,.. sun shining.. so I asked mum if we should go book a hot air balloon trip for her? Or perhaps abseiling? lol Or how about whale watching? She said that might be a bit far but I pointed out that we had all day! lol lol
We have very silly conversations sometimes... but it's lovely. We talked about our holidays and about how much we both love Autumn and the wonderful colours it brings... we talked about her wedding day to my stepdad and the music and dancing in the garden... we talked about her garden now and how she would need to guide me about sorting out the pots as they are very neglected...
I said I needed to get a few more things from supermarket and said I would prefer to get them on the way home if she could cope with that.. and she said she would sit in the car and wait.. so I asked her why not come in with me - "have chair, will shop" I told her! lol
I was thrilled when she said she WOULD come into the shop with me!! It was brilliant! It's the first time she's done that.. and we saw someone she knows and they seemed a bit uncomfortable (probably know how bad it is and don't know what to say).. but they did seem genuinely pleased to see her and her them too.. PLUS.. SHE did the shopping... I just pushed the chair and made suggestions.. so we came away with the things on my list PLUS some special honey icecream (yuck!) and strawberries and some butternut squash soup!
It was brilliant because MUM was in control... SHE was making the decisions, SHE was inspired and choosing things... and that, I think, did her heaps of good!
When we got home I made her the soup and she loved it! Had half and I have frozen the rest for another snacky lunch... and then the phone rang and it was back to the hospital for her bone drip as her haemoglobin wasn't low enough to warrant a transfusion and he calcium was high enough for her to get the drip! Yayy!! Big smiles on the way there as she felt encouraged by both results!
I did text sis as I knew she was worried.. and I told her all was going ok.
I sat for the 2 hours whilst the drip went in.. mum drifted in and out of sleep, we both read, but we didn't talk much...
Then she had to have an xray as the increased pain could be indicative of a bone fracture (apparantly).. there were charity sweets on the counter at X-ray and I asked her what she fancied and blow me! She had a bag of chocolate brazils and was soon hungrily tucking into them! lol
By the time we got home it was almost tea time and she had a defrosted cantonese chicken curry with rice that I had suggested earlier - I had told her that if she didn't fancy it even when cooked it really didn't matter and I would have no qualms about binning it.. lol she ate lots of it!! THEN she had a yummy M & S Lemon dessert yoghurt thing one of her friends had brought her... and later I asked if she would like some of her new icecream with a strawberry sliced on top! Only a ramekin dish full but she polished that off too!
So - 8pm and tablets, bed and a mug of hot chocolate and she's out for the count now... bless her.. she has had no naps today and usually she has loads!! So - I told her.. no rush to get up tomorrow - no appointments and I have arranged for the girls to arrive nearer to midday so she can have a really good lie in if she wants to..
Fingers crossed that she continues to eat little and often as she also seems to not have such a dry mouth today too, she is drinking more.. and ... I have told her to put vaseline on her lips at night and I will give her a foot massage in the morning... so... something to look forward to!
I have done her pots on the patio now, done the washing, vacuumed, cleaned the kitchen, and done the bins... roasted a chicken as requested by sis and baked a big victoria sandwich for the WI meeting she is hosting here on Tuesday... I am SO glad she is doing that... it will be very good for her to have a house filled with HER friends rather than nurses, doctors and anxious daughters! lol
I have to amend her drugs sheet and make a note of the additional morphine she's been having so they can amend her meds next week... that should help too hopefully.
Despite it being exhausting, today has been a good day. I feel so thrilled that mum came into the shops.. that was a very BIG hurdle... no-one stared (I know she is self conscious in the chair) and it is a "first" dealt with... in future, if I need to go shopping I am going to suggest she comes with me... it was, I really feel, so good for her to be in control for a change... also... when I was vacuuming I said I would do the living room and she kind of shrugged.. and I asked her if she would normally be happy with how things are housework wise and she said no - so I told her there was absolutely no reason why it shouldnt be just as she usually has it and that I would vac downstairs when she went up to bed... and so I did.. and when she comes down in the morning she will also see the little jug of pink roses that I cut from her garden...
I love looking after my mum. I love her.