Hey Katie!
Thank you for your lovely posts
I've had experience with this with my depression before. It's almost like when I have good days my brain goes "going to get you back now for being happy" and I have days of feeling utterly sh*t. Maybe over the last year those days were the start of these ME days? I dunno. But whatever it is it's horrible!
I know I had the dogs to look after and I was "working", but like you I was just sitting in my friends house eating pizza and drinking coffee. I didn't even have to get up much because they were very well behaved and didn't really need much intervention. But I guess I was more switched on than a normal visit.
But I do notice it too when I just go round to a friends for coffee or tea or even when I go to the cinema. Everything is exhausting!! Why are our bodies doing these things to us?!
I'm hoping once I do get my referral through that things will start moving. It will be interesting to see what they can do for us, but the research I've done does seem to be a little hopeless. Just learning how to cope I guess.
I didn't get to sleep till past 3 last night and then just couldn't stay asleep! Well, not for as long as I'd like! Really painful again today, particularly my head, neck, and shoulders. And to add insult to injury I got water in my right ear and it's driving me nuts!! And not helping with the ear pain *sigh*
Going to start taking Naproxen today alongside paracetamol so it's in my system for the weekend. Must remember to take it before and after work!! And paracetamol through the day. Even if it only helps take the edge off it'll be helpful.
I checked my work rota and the nurse I'll be working with this weekend is really good. She cleans kennels, put dogs in the yard, helps with washing, etc... She can be rather stressy, but we get on really well and I know we'll work as a team. Nothing like the nurse I was with the last weekend I worked, the complete opposite in fact! So feel a bit better about that knowing we'll help each other and actually work together.
I really need to attempt some course work today. Even if it's just an hour to look at this first aid case study and start to set it up.
I've not heard from my tutor at all about the work I sent her. I don't even know if she's in work because she was off on Tuesday and I've not been in since. I have a feeling she'll bloody well slow me down as she says the only day in work she'll have a chance to do mentor stuff is a Tuesday. Well, what am I supposed to do with that? She was off sick this Tuesday and I'm on stand-down next Tuesday
I have a feeling I'll be doing a lot of this by myself!
Thanks for the offer of sending me some info Katie, that's really lovely of you
I might take you up on that if I don't hear anything soon. I have spent a lot of time on the ME/CFS charity sites. They seem pretty good! xx