Just a quick update. Still in hospital, Charlie has had blood gases, an ECG, an echo and another chest xray. All ok so they've decided it's not heart related, but want him to see the specialist cardiologist on Monday anyway to double check. Now they are looking at severe reflux or a H fistula between his gullet and windpipe. He's on gaviscon and renatadine, and so far it seems to be helping his feeding (he had dropped from 5-6oz per feed to 1-3oz!) but he is still having breathing symptoms and tachycardia. They are deciding whether to do a flouroscopy to check but it won't be this week as the special radiology clinic only runs once per month. No idea when we'll be discharged, they are taking it one day at a time. He had 4 paediatricians trying to figure him out at the moment, the nurses were saying they've never known so many take an interest in one child!
I'm knackered after spending the last 5 nights here, have only left the hospital once for an hour to nip to sainsburys for supplies, while my mum sat with Charlie. So hubbs has arranged to take Wednesday off work if he's still in and he will stay over so I can have a good nights sleep and a bath.