my weird ramblings

[sumayyah]

well it seems HIM thought i was joking about the diet coach thing so ive just had to talk him through it. says he wants to do it, that hes proud of me etc etc then i got the lecture again about saying im fat and ugly

 

[coralprincess]

is your son statemented?
madam has what they call social hotspotting for her autistic tendancys ( most agree shes autistic but they want to watch and wait as shes an extreme ex prem ) to get her to react to the other kids normally. at the mo she wont talk to them just about them and if they approach her it does not go well
madams statement is wolley in places so open to interpretation and the school sure have a lose way of viewing it. it says she must have someone with her while shes eating to prompt her to chew and swallow so she doesnt choke if she forgets its in her mouth and they think just seeing her take one bite fulfils that requirement

God, that's awful! I bet you're so stressed worrying about her when she's at school.

No, he just went to a Paediatrician at a behavioural clinic, he said he might grow out of it, and that he hits out at nursery because he finds it hard to explain his frustration, plus he's one of the youngest in the year. They think he's hitting for attention & doesn't know how to get it without misbehaving, we give him lots of attention at home but he wants ALL the attention ALL the time, and he's like a dog with a bone, so single minded if he's got an idea in his head. Even at the detriment of himself, like throwing his favourite toys until they break, then crying about it. He's just not listening to anything we tell him at the moment, going through a bad patch, I'm terrified he's going to get run over on the way to & from school as he won't hold my hand when we're out, he used to when we were crossing the roads but he's started to stop that. He's uncontrollable at times. It's hard, you think that a 3.5 year old shouldn't conform but at nearly 3 stones and as stubborn as a mule it's not like I can just pick him up & carry him!

Then he & SO clash over his behaviour, SO is as stubborn as he is & neither one will back down.

He's seen the inclusion officer at Nursery, she thinks he will grow out of it. He's also got an appt at the mental health clinic, hopefully they can give us some tips on how to discipline him cos God knows we've tried everything! I feel bad as we always seem to be shouting at him. :sigh:

A big part of my emotional eating is from stress over this. I even started smoking again for a week over Xmas, his behaviour was so bad.

 

[sumayyah]

aww bless ya hun, hopefully they can come up with some strategys to help you all
they tell me just to ignore her when shes having a moment but thats easier for us as she doesnt have the strength to hurt herself

 

[*Shanny*]

claire u had a good day? x

also do u just have shakes a day? x

 

[sumayyah]

claire u had a good day? x

also do u just have shakes a day? x

yup todays been a good one, 2 shakes so far and about 4.5l of water so far

yeah 3 shakes a day and my water is what im supposed to do, not always what acctually happens thou

 

[Lily]

so back holiday monday huh, back to school for madam tomorrow, all the spots have crusted so im hoping they will take her. its her first school swimming lesson tomorrow and she desperatly wants to go. im a bit worried about it as the school tend to not help her dress after p.e so i usually arrive to pick her up on p.e day to find her wondering round in her underwear because no one will help her, how they think shes going to get out of a swimsuit, dried, dressed and onto a bus in a time frame i dont know. will have to have a word as if she asks an adult to help remove her swimsuit and they just yank it down there at risk of puling her mic-key button clean out of her stomach with the ballon still inflated

That's pretty rubbish. Surely it's obvious she needs just a little bit of extra help? I guess you've been down the 'Special Needs' route?

Doh - edited to add that I've just read your later post and see that she does indeed have a 'woolly' statement. Hmm. I guess you must get mightily sick of jumping up and down...

 

[sumayyah]

That's pretty rubbish. Surely it's obvious she needs just a little bit of extra help? I guess you've been down the 'Special Needs' route?

Doh - edited to add that I've just read your later post and see that she does indeed have a 'woolly' statement. Hmm. I guess you must get mightily sick of jumping up and down...

you should have seen the letter i sent to the sen bloke contesting the wording

the phrase access to..... told him i have the access to go to a 5 star resturant but doesnt mean thats ever happening either, lol

 

[sumayyah]

so im working on the eating slowly and mindfully stuff out of the beck book and i can now clearly remember the arguments had at primary school, being shouted at for taking longer than the lunch break to eat and eventually having my food just taken off me after they felt enough time had passed, i soon learnt to eat as fast as i could and i know now when i eat im finished in half the time of everyone else

 

[coralprincess]

so im working on the eating slowly and mindfully stuff out of the beck book and i can now clearly remember the arguments had at primary school, being shouted at for taking longer than the lunch break to eat and eventually having my food just taken off me after they felt enough time had passed, i soon learnt to eat as fast as i could and i know now when i eat im finished in half the time of everyone else

God how awful! I remember them making us eat everything, even stuff I hated like Manchester Tart! Fancy making a kid eat pudding if they didn't want to! Thank God things have changed!

Thanks, I hope they give us some strategies too. It's hard when people judge you on their behaviour. The only people who truly understand are those who are in the same boat.

Hope you have a great day xx

 

[sumayyah]

morning world, todays a good one but its blimmin cold, lol

still showing a lb up on my last weigh in so tomorrows weigh in looks to be a gain. never mind will deal with the disappointed chat from my cdc

am going with a friend to the markets in a while to stock up on fruit and veg for madam, my older sis isnt liking the state of my cupboards recently, theres no treats she can get her hands on ( accuses me of trying to make her fat while shes raiding my childs treat cupboard, simple solution for her, stop stealing off my kid lol )

i took madam to school and they were fine about having miss spotty botty since theyve all crusted and shes not appearing unwell now. made sure i told madams TA that some care will be needed getting madam back out of the swimsuit and told her what would happen if its yanked against the button, the gag and the look on her face means hopefully they will take that instruction seriously

 

[sumayyah]

God how awful! I remember them making us eat everything, even stuff I hated like Manchester Tart! Fancy making a kid eat pudding if they didn't want to! Thank God things have changed!

Thanks, I hope they give us some strategies too. It's hard when people judge you on their behaviour. The only people who truly understand are those who are in the same boat.

Hope you have a great day xx

did you get the "theres starving kinds in africa who would be glad of the food" speach too?

yeah folks in public can be ummmm interesting. ive had people tell me all she needs is a good smack when shes gone into melt down mode, others that tell me kids love em and get in her face which again prompts a melt down with me practically begging them to back off and then theres the ones who see madam in her chair or slung over my sholder bag of spuds stylee and tell her loudly thats shes too big to be in a pushchair/carried by mummy and should be walking, they get told loudly that that would be lovely if it wasnt for the fact she has cerebral palsy so cannot manage to walk round like everyone else

 

[coralprincess]

did you get the "theres starving kinds in africa who would be glad of the food" speach too?

yeah folks in public can be ummmm interesting. ive had people tell me all she needs is a good smack when shes gone into melt down mode, others that tell me kids love em and get in her face which again prompts a melt down with me practically begging them to back off and then theres the ones who see madam in her chair or slung over my sholder bag of spuds stylee and tell her loudly thats shes too big to be in a pushchair/carried by mummy and should be walking, they get told loudly that that would be lovely if it wasnt for the fact she has cerebral palsy so cannot manage to walk round like everyone else

Yes, I've had the smack comment, I just said, "If only it worked"

I can't believe people actually comment on the pushchair! What the hell has that got to do with anyone?! People are so judgemental! I will admit to doing it before I had one of my own with the supermarket meltdown. And I am a bit judgy still but only when it comes down to people ignoring their kids when they are obviously distressed or not trying to sort them out at all.

He's not got the anti social aspect of Autism, so he's the one in peoples faces, lol. I can imagine how bad that would be for her though. It's becuase special needs kids aren't talked about more, people need to be made aware then they understand that they aren't just 'naughty'!

What really pisses me off is when other kids call my DS 'naughty Nathan' and their parents laugh or just smile. If my DS called another child, or even just another human being, anything, I'd tell him to apologise & tell him we don't say things like that. So far, he never has, so maybe I'm doing a better job of parenting than they are! I just think to myself, well, he may be 'naughty', kid, but you're ugly

 

[sumayyah]

what lovely parents! yep hun your doing a great job with your son, your setting boundarys and your helping him work through issues rather than just sitting back and letting him do what the heck he likes ( ive seen those types out and about and its very hard to bite your tounge and not tell them to pay attention to thier child, lol )

oh and when kids have said things about kaya and thier parents think its funny i tend to bob down next to kaya and talk to her telling her that shes not x,y or z and that some people just dont have enough understanding, usually shuts em up

 

[coralprincess]

oh and when kids have said things about kaya and thier parents think its funny i tend to bob down next to kaya and talk to her telling her that shes not x,y or z and that some people just dont have enough understanding, usually shuts em up

I so wish I had the balls to do this. I'm a big wimp :sigh:

 

[coralprincess]

Although, one kid was chanting naughty nathan a few weeks ago, his Mum told him off, she said "Don't say things like that, and you're naughty anyway!"

Made my day

 

[sumayyah]

I so wish I had the balls to do this. I'm a big wimp :sigh:

ive had nearly 6 years of stupid comments to grow a thick skin when it comes to madam

ive had numptys come and tell me my child would be better off dead ( this was after a year watching my baby girl fighting for her life ), ones telling me im evil and cruel for feeding her via a tube and for suctioning her i just dont care what they think anymore

i never minded children questioning me about her and wanting a good look because they were truely just curious about the differences, its adults who are nosy f'ers

 

[sumayyah]

wow hasnt it been beautiful out today, lovely sunshine

 

[sumayyah]

well back from weigh in and its a sts this week. onwards and downwards

 

[*Shanny*]

well back from weigh in and its a sts this week. onwards and downwards

Nice one Claire.. Xx

 

[sumayyah]

Nice one Claire.. Xx

how are you today?