Whats occurring?

*Emsie* said:
Ahh ok wondered if it was cos of cals x
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No I wish I liked them as there good for you I've never eat them I used to eat the white of my mums eggs and shed have my yolks haha

Ohhh last day tomorrow how you feeling about it hope they all spoil you on your LAST DAY Xxx
 
Katie's World X said:
No I wish I liked them as there good for you I've never eat them I used to eat the white of my mums eggs and shed have my yolks haha

Ohhh last day tomorrow how you feeling about it hope they all spoil you on your LAST DAY Xxx
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I love the yolks n whites lol

Feeling strange lol can't believe it's happening and am glad am leaving but know I will get upset too x
 
Im so emotional this week came to bed to read my new mag and I've ended up googling the so called condition my son has and I can't stop crying I know I shouldn't read to much into it till the day they tell me the proper diagnosis I feel like going to get in bed with him for a tight squeeze sorry for my moaning Xxx
 
Katie's World X said:
Im so emotional this week came to bed to read my new mag and I've ended up googling the so called condition my son has and I can't stop crying I know I shouldn't read to much into it till the day they tell me the proper diagnosis I feel like going to get in bed with him for a tight squeeze sorry for my moaning Xxx
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Ahh Katie big hugs and for your boy too! If it won't wake him go and give him a squeeze babes x
I'm going to ask what condition you have been googling but understand if you don't want to say xx
 
*Emsie* said:
Ahh Katie big hugs and for your boy too! If it won't wake him go and give him a squeeze babes x
I'm going to ask what condition you have been googling but understand if you don't want to say xx
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Thankyou emsie for the hugs Xxx
He would wake up emsie he's never had a full nights sleep since he was born he wakes up between 10-20 times a night crying as he gets muscle spasms in his legs they are so stiff we have to stretch them for him :-(

Very long story
But basically the doctors think he has mitochrondrial disease there are over 200 different types what they have discovered but cant make out which one my son has :-(
there is no cure for it just medicine to help him along the way he is on medication 4 times a day to help with stiffness he's been on this medicine for a while at first there was improvement but lately he is using his wheelchair more we have a check up on monday with his neurologist so hoping to see what other options there is for him. he is depending more on his wheelchair he is okay getting round the house so he mostly uses his chair on days out or school he is only 8 breaks my heart he also has a walking frame k-walker as he has poor balance so makes it easier for him to have something to hold in too he is such a happy child and I'm so grateful for that and he isn't aware that he's any different to the other children at school he is quite delayed for his age and has a one 2 one to work with him
As I said he's so happy and that's all that should matter sorry for the essay I could go on and on he had been through so much to investigate 2 lumber punchers 2 skin biopsys and still waiting for a proper diagnoses Xxx
 
Katie's World X said:
Thankyou emsie for the hugs Xxx
He would wake up emsie he's never had a full nights sleep since he was born he wakes up between 10-20 times a night crying as he gets muscle spasms in his legs they are so stiff we have to stretch them for him :-(

Very long story
But basically the doctors think he has mitochrondrial disease there are over 200 different types what they have discovered but cant make out which one my son has :-(
there is no cure for it just medicine to help him along the way he is on medication 4 times a day to help with stiffness he's been on this medicine for a while at first there was improvement but lately he is using his wheelchair more we have a check up on monday with his neurologist so hoping to see what other options there is for him. he is depending more on his wheelchair he is okay getting round the house so he mostly uses his chair on days out or school he is only 8 breaks my heart he also has a walking frame k-walker as he has poor balance so makes it easier for him to have something to hold in too he is such a happy child and I'm so grateful for that and he isn't aware that he's any different to the other children at school he is quite delayed for his age and has a one 2 one to work with him
As I said he's so happy and that's all that should matter sorry for the essay I could go on and on he had been through so much to investigate 2 lumber punchers 2 skin biopsys and still waiting for a proper diagnoses Xxx
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Probably best not to wake him then Katie! ;)
It is good that he's a happy boy despite the aches and pains etc hard for you though, don't apologise it's good for you to get it out! Wish I could be more helpful xx
 
*Emsie* said:
Probably best not to wake him then Katie! ;)
It is good that he's a happy boy despite the aches and pains etc hard for you though, don't apologise it's good for you to get it out! Wish I could be more helpful xx
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I feel abit better talking about it as me and hubby keep it bottled up and don't open up to each other as often as we should which is sad as I know he'd be upset of the thought of me in bed crying I think ill shout him up for a cuddle instead.

I hope you have a lovely last day tomorrow whhhooooo to a new start next week for you EXCITING !!!

NIGHTY NIGHT Xxx
 
Katie's World X said:
I feel abit better talking about it as me and hubby keep it bottled up and don't open up to each other as often as we should which is sad as I know he'd be upset of the thought of me in bed crying I think ill shout him up for a cuddle instead.

I hope you have a lovely last day tomorrow whhhooooo to a new start next week for you EXCITING !!!

NIGHTY NIGHT Xxx
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That's a good idea to get a cuddle from hubby I know from work a lot of families struggle hun x

Thanks Katie I'm sure I will keep updating on here so you'll know how it's going lol x
 
Weighed in a day early as hubby is going to see if his mum will have the kids tonight so we can go out for tea which I think will be nice so anyway I have lost 0.7 pounds this week last day of the gym then I'm going to relax this weekend ;-) hope you all have a lovely FRIDAY ladies Xxx
 
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