Cheekychinchilla's food and stuff

Hey guys!
Yeah Tetris, I started SW and Rachelle started WW about 6 months after we started baking. Lame!! We were good at cupcakes too :D Took some to my old bosses summer get together and they vanished!!! Rachelle's really good at chocolate brownies and John is really good at Key Lime Pie. I've challenged my John to pumpkin pie later this year coz I've always wanted to try it and he's been promised a pumpkin by his friend who has an allotment :D

Tace that is awful about Ian. Surely he has a right to a live his life and live it well?! I feel so sad for people who are housebound and aren't looked after properly by the NHS. He's very lucky he has you, he really is :)
I'm really starting to lose my patience now. Every day the postman's been and I don't get a letter from endocrine makes me more and more angry!

I haven't been too bad today, in the grand scheme of mystery illness. I had a really crap night and woke up loads, so re-set my alarm and decided I'd get my tyres done tomorrow instead. I didn't really sleep, but did snooze. I'm having such bizarre dreams during my snoozing time. A lot about food :confused: Haven't had any late night snack attacks for a few days tho - was getting ridiculous eating at like 2am and not remembering I'd done it!! I did wake up incredibly anxious though and my heart was racing! Managed to call the garage and arrange the appointment for tomorrow and also finally called the hospital to confirm the appointments later this week. I spoke to such a nice woman on the phone, think I phoned the actual ward. She's was so nice, called me "lovely", and said she'd see me on Thursday. Was such a short conversation, but she was so nice it actually put me at ease a little! They need more staff like that.

I managed to eat some porridge with Koko (whatever it is now!) milk, a few raisins, banana, and a bit of maple syrup.

John picked me up and we went to the Doctor Who exhibition at Space Port. It wasn't as good as last time, but still fun. He took my pic with a Dalek so I'll get him to send me it and put it on here. According to my wonderfully honest Sister I look like I've almost joined the living today. So that's good!
We had a wander round Space Port and a stroll along the river. It's at Birkenhead/Port Sunlight so the view along the river was of the Liverpool waterfront. It's actually pretty impressive ;)
We stopped at Sainsbury's to get a pizza, wedges, and a 'good for you' dip ;) And then went to his. I managed about 10 wedges, just over a tea spoon of dip, and 2 slices of pizza. Not bad going seen as I feel sick and I'm not entirely comfortable eating in front of him yet :) He did keep offering me chocolate, but I couldn't.
About 7:30 (as always!) the cortisol kicked in so my heart started pounding and the headache got much worse :( Felt really sick and dizzy! I was sitting down in a darkened room watching tv.... :rolleyes: He was really nice and let me watch The Great British Bake Off :D Paul Hollywood's gotten a bit chunky since last year hasn't he?! :eek: :p
Then he drove me home.
Was a nice day actually and I only felt super nervous and anxious a few times. Glad the worse of the symptoms took a bit of a backseat today. Paying for it now tho, they seem to have caught up.

Anyway, I might have some toast with laughing cow or Alpen's in a minute with an ep of Dr Who before bed. If I don't eat a little something now I'd bet I'd have the stupid snack attack at 2am!

Got a busy day tomorrow, but should be good. Getting the tyre sorted around 12, lunch somewhere with Mum and Michelle, then a double feature at the cinema if we can make it work :)

Hope everyone's doing ok.xx
 
I really like pumpkin pie, I used to male it for the kids with the pumpkin they took out when carving them for halloween :)
You're brain is trying to tell you something dreaming about food and getting the munchies in the middle of the night, are you eating enough during the day?
It's nice you got a nice nurse it should make it a little easier for you.
sounds like you've had a good day with John, and he must like you to let you watch your programme :) I've not watched this week's yet, probably will do before I go to bed.
I hope you have a nice day today x x x
 
Re: Cheekychinchilla's food and stuffCheekychinchilla's food and stuff

Always makes me smile to hear you've had a nice day with John :D he must really like you to let you put on the bake off :p though if he needs pie tips... Does he even know how to make pumpkin pie?! :p
I love it when one nice member of staff makes you feel really good- the woman who greeted me at my film school made me feel insanely great, she was going on about how everyone had been shown my photography portfolio and made out like I was famous or something LOL! But generally really sweet also. Funny thing is she is now a pretty good friend and we might even go on holiday together at some poimt because she goes with her girlfriend to mainland portugal a lot to cisit her gf's family and we go to the coast to stay at my dad's villa so they might double it up and come for a hol after with us :D love them!
 
Have I missed the big bake off again - ahhhh! Prob coz I'm proper engrossed in celeb bb :) lovin it !!

Yay to bigging up nice nurses, there are still some of us around ;) hehe x x
 
Aww Tetris that's so nice :D It's amazing when you meet someone like that. Would be really cool if you did get to go away together :D

Ruby, whoever it was I spoke to was so nice and just came across as really caring and just nice! Usually when you phone anywhere to do with medical stuff you get a snotty secretary who couldn't care less if you were literally exploding to death ;) Would be pretty pleased if I got to meet her tomorrow lol.

Have had a nice day today guys :eek: I know! I heard you all fall over ;)

I got up early (for me!) and got a shower and straightened my hair and everything. Felt like making an effort today. Although not when I saw the boyfriend yday... oops ;)
Took the car to the nice garage and dropped it off with the lovely Tom. me and Mum went for coffee and waited for Michelle.
Picked the car up. Did he try to rip me off? Get me to do other stuff? Even charge me? No, no he didn't lol!! That's the 3rd time I've been now and I've not spent a penny. He said he'll kinda throw it in to the cost of the work for the warranty job, well hide it in there, so I don't have to pay :faint2:
What a dramatic difference from the complete and utter d*cks I've had to deal with where I got my car from eh?!

So off to town we went and had lunch and a chill out at the veggie place. Then went to the cinema to see Elysium and 2 Guns, with a quick walk and arcade visit in between.

Took the wife home, came home, cleaned and fed the bunnies, fed me, watched an ep of Doctor Who while eating the Chocolate Crunch I'd forgotten I'd bought from the cafe, and now I'm jabbering on at you lovely ladies.

I should probably go to bed seen as I have to be at the hospital for 8:30 tomorrow :cry: IF I feel ok me and the wife are going for brunch, maybe make camp in a coffee place and read for a bit, then see Jurassic Park in IMAX!!!!!!!!!!!!!!!! I have enough Odeon points to pay for us both and I figure even if the diazepam doesn't dampen the vertigo and I have to close my eyes at times it's not like I wont know what's going on ;) I WILL cry at the scene with the brachiosaur :eek: That, to me, is one of the best scenes ever in cinema. It's so emotional! Might just be coz I'm a dino geek, but I love that scene. I usually tear up a bit watching it at home, but I all out cried when I saw it at the cinema last year :eek: Can't imagine how I'll be watching it in 3D ;)

Right, I'd better get ready for bed. Coz no doubt my book (The Passage) will keep me awake for at least an hour lol.

Hope y'all ok.xx
 
So happy that you had a nice day :D whiiiii! Fingers crossed for a lot more of those!
Garage sounds SO good. Like you got out of an abusive relationship with the last car place and have met prince charming with the new! Hehe
 
Omg what happens to the brachiosaur? I can't cope with animal death :( hope all is well and the appointment went ok? X
 
Haven't you seen Jurassic Park Ruby? I'm talking about the first time they see a living dinosaur - which happens to be a brachiosaur :confused: :p

I wish I had better news but this morning was absolutely horrific. Even by my standards! Right, I only went for bloods (big tube and a smaller one) and to be given the meds to take tonight. It took them over an hour to get the bloods. The first nurse who looked at me pretty much said she wasn't going to do it because she couldn't see any viable veins and didn't want to mess it up. Another nurse had a go and gave up. So they went to get the nurse who used to work with premature babies. She gave up. So they then went to get the senior, specialist nurse. AN HOUR!!!!!!!
I completely lost count at how many times I was stabbed. My friend was watching and lost count at 8. I've got 6 puncture holes, but they kept having to re-use the same ones and keep trying. My hands and wrists are incredibly painful and the sight of them is making me sick. Kept my hoody on as much as possible today.
They had to keep going to get different types of kit and catheters and different tubes and all sorts.
Safe to say, it wasn't the most fun thing I have ever had to do. They kept having to tilt the chair further and further back coz I kept almost passing out.
The first 2 nurses who had a go were nice and gentle and I only really felt it when they went 'digging' :jelous:
But the 3rd nurse had to keep going, moving it round, digging, going deeper, etc... I actually even almost cried from the pain! And it was so horrible having catheters fitted, re-fitted and held in place for ages. She finally almost filled the big tube and that vein gave out so she had to dig round. LUCKILY it kept on giving and they eventually had enough to fill the tubes needed. But only like the bare minimum.

I can't wait for tomorrow..... :cry:

I've just taken the steroids - had to take them at 10. I always read the leaflets for fun and usually find the side effects list a bit silly. But holy crap you should see some of the stuff on this list! I'm SO glad it's a one off dose just for this test coz it sounds horrific!
The one's that stood out for me were:
Severe depression and suicidal thoughts
Feelings of being completely alone :confused:
Collapse and death.

That sounds like a wonder drug that doesn't it?!! Bloody hell!

Anyway, I'm absolutely exhausted! Last night as I was going to bed Michelle text to say she was on the way in to work to check on her in patients (she's a Vet Nurse) but she'd had to get off the bus coz she got hassled by a group of scally kids and spat on :eek: So of course I went and got her, took her to work, helped with the animals (well, I mainly played with a kitten ;)) then took her home. Think I got to sleep some time after 2am and was up at 6:45. Gotta be up that time again tomorrow too to get back to the hospital :cry:
They've said if I get there early, which I should, to just go straight up and they'll start working on me as soon as possible coz the blood tests have to be really carefully timed. Absolute joy! I said they'll be dreading me going back. They said if there's no one there when I get in they're all hiding in the cupboard :8855:
I have to say though, as awful as it was for me, all the ladies were lovely, kind, really caring, very apologetic, and really supportive. Just hope tomorrow goes better. I'm drinking like a dehydrated fish to help them out. I don't think I drank enough yesterday! I did drink about 2 pints of water before the hospital tho and lowered the diazepam dose coz I know that can 'flatten' you. I went in to full on shock mode though coz my hands, arms, and legs all got really cold and numb. Stupid body!

Right, I'm going to stop rambling. Just needed to share with people who wouldn't go "Urgh! Don't tell me that!!"
Oh and Michelle was very lovely and kept chatting, rubbing my shoulder, telling me where Mr Seagull had gone, etc... lol. And we both chatted to the nurses - well, I did when I could!

Going to bed to read and hopefully sleep. One of the other side effects of this steroid is being unable to sleep.... Night all ;) x
 
So sorry it was so bad yesterday, I hope today is a little easier. And I hope you've got some sleep last night, you should have been falling asleep being up so late. it must of helped a bit having someone there with you supporting you x x x
 
Sounds like my worst nightmare :'( you poor thing!! *huuuug!!*
 
Iv seen it when I was a kiddy but can't really rem it .. Ile have to watch it ...... The only thing I rem Is Geoff goldblum sat on the bog and a dinosaur rips the building around it off?? Sad eh hah!!
Eeeek about the blood, bless ya :( ... Hope you've managed to feel better since xx
 
Hey guys!
Today went a little better. Just two stabbings today before she got me. I did everything I could to help. I drank a lot yesterday, drank about 2ltrs this morning before I went in, kept myself warm, and even got out of the lift 3 floors early to walk up the stair and help get my heart/blood pressure going. While I sat waiting for her to set everything up I kept my hands under the pillow to get them warm. Luckily I had a visible vein on my right hand. She tried the normal equipment first go and it just wouldn't work, so back to the kids needles and catheters. I swear it's never this much hassle!
I took the full 10mg of diazepam today, but I have to say it had nowhere near as much effect as normal. I think it was probably coz I was worried abotu John being there as well as being worried it would go as badly as yesterday. But yeah, so very glad I wasn't continually stabbed for an hour today. The actual test probably took about 15mins today coz she had to try twice.
John took me to Otterspool and we got breakfast. I got a really lovely home made granola with chopped strawberries on top and honey and yogurt. Think the yogurt migh have upset my stomach tho coz I'm burping this horrible sulphur type smell (gross!) and just had pretty icky diarrhoea (sorry!). Last time that happened I'd drank off Almond milk :eek:
We had a stroll and a sit by the river. Then he took me to the pet shop for some supplies. And he had coffee back at mine.
I felt bad but I couldn't even hold his hand or give him a cuddle coz my hands, wrists, and arms are SO painful! It was really painful again today coz she had to go quite deep and readjust for the second bottle :( keep covering my hands with my hoody :eek:

Anyway, all's I need to do today is check on the bunnies and take the supplies out. And I've just phoned head office to double check my pay. I've been paid just over £100 more this month than last month :confused: It's not like I've done over time seen as I've been off work for 3 months :p Oh, which reminds me, I really need to email my boss!

Think I'll read and watch tv/films the rest of the day. Rachelle's at John's and my Mum's staying at my Nan's. Home alone :D Be nice to just chill out and stuff.

Didn't sleep very well last night. About an hour after I took the steroids it all kicked off. Got a ridiculous headache, was breathing quite deeply/almost like when my asthma's bad, and my heart was hammering so badly. I swear it was trying to get out of my chest. Even with being so tired and taking a sleeping pill it took a long time. Think I slept properly for about 4hrs, then snoozed/lightly slept for a couple more. SO TIRED!!x
 
Wow Ruby, it has been a while since you've seen Jurassic Park!! lol. It's not Jeff that hides in the toilet and gets eaten, it's the lawyer. Jeff does get chased, but he survives.
JP is one of my all time favourite films. I think it's absolutely perfect and you can't fault it at all. Well, I can't ;)

Would quite like to go see a film today but I can't drive, so meh. Stupid meds!! xx
 
Wow Ruby, it has been a while since you've seen Jurassic Park!! lol. It's not Jeff that hides in the toilet and gets eaten, it's the lawyer. Jeff does get chased, but he survives.
JP is one of my all time favourite films. I think it's absolutely perfect and you can't fault it at all. Well, I can't ;)

Would quite like to go see a film today but I can't drive, so meh. Stupid meds!! xx

Pahaha yeah I think I was about 10 wen I last saw it - so about 17 years ago ;) xx
 
I'm so glad it went better today and they didn't have to dig around, at least that's another thing out of the way. It sounds like it was a good job you only had to take those steroids once, they sound as if they don't agree with you.
I was greatly disappointed with the JP films, I'd read the books first which were brilliant, Michael Crichton is one of my favourite authors. I think if you had watched the film without reading the book it would be good x x
 
Jurassic Park is one of my all time favourite films!! I haven't read the books yet, but I got the first one for my birthday this year :)

I only took a very small dose of that steroid as well. Think it was either 2 or 2.5mg! It is used in treatment of some illness though. The leaflet was useful and says it's used in treatment of 'serious illness'. Thanks for that info :p Sounds like it'd be a horrible drug to have to take long term!! It just made all the symptoms I'm getting from the increased Cortisol production a million times worse. I knew it would, but kinda hoped it'd be ok. pretty damn tired now, I have to say :zz:

The nurse did have to dig round a bit today and went incredibly deep. But used the same vein and hole twice. Bloody hell it hurts!! But yes, very glad I don't have any new ones!! My veins are going to be f*cked if this carries on! :rolleyes:
 
Don't you just love info pamphlets in tablet boxes they either scare you to death or tell you nothing lol. Some of them seem to have worse side effects than the illness they're curing :eek:
I hope you were tired enough to get some proper sleep x x
 
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